Wednesday, February 19, 2014

Article running today in the newspaper

Eyes on Arlington: Trivia party for stricken teen set for March 2

Posted Monday, Feb. 17, 20140 comments PrintReprints
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A Trivia Night that sounds like fun is planned for March 2 to raise money to benefit the Ashley OwenFund. Owen, 13, lives in Arlington and has had a rare brain stem disorder called chiari malformation type 1 since she was 6.
Jerry and Diane Maassen are organizing the Trivia Night to help their granddaughter’s family as it deals with her illness.
“I started the nonprofit Ashley Owen Fund eight months ago to help offset my granddaughter’s medical bills due to this very debilitating brain disorder,” said Jerry Maassen. “This event not only helps a great personal cause but also brings awareness to the national effort to fight chiari malformation.”
The main event of the festive evening involves each table working as a team to answer 10 rounds of trivia questions in various categories. At the end, judges review the answer sheets to determine which table answered the most questions correctly. The winning table gets a cash prize.
Between rounds, attendees will visit and shop at a silent auction where bidding may be stiff on some great products and services donated by local merchants. A 50-50 drawing is also planned.
Maassen said businesses can sponsor a round for $100 and in return have their company name mentioned at the event and distribute literature about their business on a sponsor display table.
According to Owen’s blog, the complications and pain from her condition have kept her out of school since late in 2012, but her hard work in home schooling has kept her on grade level. To learn more, visit her blog at ashleyowenstory.blogspot.com.
Trivia Night will be at the Knights of Columbus Hall at 2625 S. Cooper St. from 3 to 7 p.m., with doors opening at 2:15 p.m. Partygoers are welcome to bring their own cooler with snacks and wine. A cash bar will offer beer and soft drinks.
The cost is $160 for a table of eight ($20 per person) with early reservations or $25 per person at the door. Reserve your table by contacting Maassen at 702-217-9351 .

Read more here: http://www.star-telegram.com/2014/02/17/5576170/eyes-on-arlington-trivia-party.html#storylink=cpy

Friday, February 7, 2014

Staying strong!!!!

I just wanted to pop on here and give a big hello to all of Ashley's Angels. There isn't anything new to report. Ashley is about the same really and she is learning to cope and push through her daily headaches and pain. She has really been focused on her online schooling and her writing and drawing. She is so very talented it just amazes me. I have decided in the next few months after alot of thought, to take Ashley to a second Neurosurgeon. This in itself will be such a very long process once again but with her facing this brain disorder with no known cure, we just need to concur with another Neurosurgeon. Thank you all again for your continued prayers and we hope to see you at the fun trivia party event on March 2.

Join us for a fun filled afternoon fighting Chiari